Thursday Evening: We walked to where Maisyn’s NICU station was and immediately I was flooded with tears again. She was back on the newborn warming table wearing just a diaper. She had tubes into her nose, delivering the oxygen. She was covered with monitors taped to her tiny body needed to measure her vital signs. A cuff around her foot measured her oxygen levels. An IV into her hand ready to give her the antibiotics she needed. Tears streamed down my face as they rolled the echocardiogram machine over so they could check her heart to make sure the breathing issues weren’t caused from a heart defect of some sort. I never realized how incredibly difficult it is for a parent to have a baby in the NICU.
The pediatric neonatologist/cardiologist was there as the technician did the echocardiogram. He assured us that everything with her heart was fine. The reason she seemed to be having issues with her breathing was most likely due to an infection of some sort. They would have to draw more blood work the next day to check her infection levels again. As of right now though, her visit would be a minimum of three days.
Friday Morning: I was scheduled to be at my surgery by 11:30 a.m, so we went over to the NICU around 9:30 to visit baby girl. Again, as soon as I start walking towards her little crib, I am overtaken by tears. I informed the nurse I would try to be back later that night after a little bit of rest, but she assured me she wouldn't see me until at least the next day. Mr. Chaotic and I took turns snuggling with Maisyn and rocking her. We came right between feedings so were unable to feed her during this visit.
Friday Evening: Mr. Chaotic brought Kinley with him to visit Maisyn. Kinley thought it was so neat having to scrub in. LOL. Hubby got to feed her and Kinley was able to snuggle her little sister. Their visit was cut short by the nurses due to shift change in the NICU.
Saturday Afternoon: Maisyn's nurse called me to inform me that her infection levels had gone up so she wouldn't be able to come home on Sunday as she would need at least seven days of antibiotics, maybe even ten days. Also, they had tried taking her off oxygen, however, overnight her levels dropped. She had to be put back on oxygen. Hubby and I weren't able to get there until late afternoon (after shift change). Tears streamed down my face some more as I snuggled her, knowing she would be staying in the NICU longer. She has to be off oxygen for at least 24-hours before she can be released.
Sunday: Still no change. Still on oxygen and still getting antibiotics twice a day. And I still cry when I go visit her in the NICU. Does it ever get easier?
Monday Morning: Bode & I go visit her after we drop the girls off at school. She was sleeping when we got there, but I took her out of her little crib so we could snuggle her. I learned that she had more blood work taken early that morning and her infection levels have dropped! Her oxygen level was at 35%. We were there long enough for two feedings (four hours+). Bode insisted we stay at the hospital for lunch. While eating lunch, we called my mother-in-law so she could come to the hospital to visit Maisyn too. Once she got there, we went back upstairs to visit. This time, Bode was very antsy so we didn’t stay long.
Monday Evening: Mr. Chaotic took the girls to see baby girl. He learned that the nurse had lowered Maisyn’s oxygen levels to 25% and she was doing great!
Tuesday Morning: I had my MIL come stay with Bode at the house while I went to visit baby girl. When I got the NICU, Maisyn was sound asleep. Today was the first day I didn’t cry when I was there. I picked her up so I could snuggle her while she slept. When she woke, the neonatologist did his assessment of her. He wanted the nurse to lower her oxygen, in which she did down to 21%. The whole time I had been snuggling her though, the little tubes kept falling out of her nose, which basically meant she wasn’t getting any oxygen. The nurse said that was fine though as they wanted to start weaning her off if we wanted to bring her home Thursday.
Tuesday evening: Mr. Chaotic & Talyn went to the NICU and Maisyn was off her oxygen! They took her off it at 2:30 that afternoon and she’s been doing great all day. Best news ever! Nurse mentioned that Maisyn had lost a little weight so that was a new concern.
Wednesday Morning: Again, I had my MIL come stay with Bode so I could visit baby girl and not have him being all crazy in the NICU. Maisyn was still sound asleep and still off her oxygen! Instead of picking her up & snuggling her, I just let her sleep in her crib. I asked about the weight issue and the nurse said there wasn’t an issue as Maisyn had been gaining weight. When she woke, I changed her, fed her, and then just snuggled her for a bit.
Wednesday Evening: The whole family went to visit baby girl tonight after supper. It was complete chaos as the kids were acting all crazy and being loud. She was still off her oxygen, which means she made it past the 24-hour mark and she was on track to come home Thursday.
Thursday Morning: MIL came again today to watch Bode for me and this time she brought my nephew to play with Bode. I went a little bit later than I had been because she had been sleeping till after 9:30 the past couple days. Maisyn woke up shortly after I got there. I changed her diaper and while doing so she pooped on me. The neonatologist then did his discharge assessment. I then fed her, put her take-me-home outfit on her, and we waited for Mr. Chaotic to show up. While waiting, Maisyn’s nurse and I went over the discharge paperwork. Around 11, Mr. Chaotic arrived. I put Maisyn in the car seat, the nurse walked us downstairs and we said our goodbyes & thank you’s. We then decided to eat lunch one last time at the hospital. I arrived home with her just after twelve noon and Bode couldn’t be happier!
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